EB Research Partnership

ShineMaker Foundation Creates Innovation Award with EB Research Partnership.

NEW YORK, July 19, 2019 -- EB Research Partnership (EBRP), the largest nonprofit dedicated to funding research aimed at treating and ultimately curing Epidermolysis Bullosa (EB), is honored to announce a grant from the ShineMaker Foundation, whose mission is to support and elevate people and organizations that explore innovative ideas to accomplish social good. The ShineMaker Foundation will provide funding over the next three years to establish the ShineMaker Innovation Award, in order to challenge the research, scientific, and medical communities to come up with the most innovative ideas to advance treatments and cures for EB.

"We look for organizations and individuals that demonstrate creativity and out of the box thinking, then determine where we can make an impact. In EB we saw a devastating disease in need of a cure, and an organization in EBRP chasing down that cure by taking an innovative approach to not only curing EB, but creating a model that can lead the way for the curing of many other diseases. By establishing the Innovation Award, we hope to help incentivize the most brilliant and breakthrough ideas to come forward." -Tiffanie DeBartolo, Co-Founder, ShineMaker Foundation.

"We hold a bold and urgent mission to rapidly accelerate life-saving treatments and cures for EB. Accomplishing that goal requires uniting leaders across the research, medical, industry, patient, and philanthropic communities. The ShineMaker Foundation joins us as a key member of the team working diligently to deliver meaningful results for patients and shares our commitment to innovative approaches in pursuit of a cure", Michael Hund, CEO, EB Research Partnership.

A life-threatening genetic skin disease, it is estimated that 500,000 people worldwide have EB. Children with EB are called “Butterfly Children” because their skin is as fragile as the wings of a butterfly: they face severe pain, open wounds, and a grueling bandaging process on a daily basis. There is currently no treatment or cure for EB, however EBRP is dedicated to changing that as rapidly as possible.

Submissions will be reviewed semi-annually by EB Research Partnership’s Scientific Advisory Board which is chaired by Dr. Anne Lucky and recommends awards and grants, based on their evaluation of the potential for development of commercially viable treatments and cures for EB. All parties - non-profit and commercial - are encouraged to apply.

Learn more at www.ebresearch.org

About EB Research Partnership

Founded by a dedicated group of parents and Jill and Ed Vedder (Pearl Jam), EB Research Partnership(EBRP) is the largest 501(c)(3) nonprofit dedicated to funding research aimed at treating and ultimately curing Epidermolysis Bullosa (EB), a group of devastating and life-threatening skin disorders that affect children from birth. EB Research Partnership works to treat and cure EB as quickly and efficiently as possible and fulfills their mission by partnering with non-profit and for-profit organizations, foundations, individual donors, and the EB and research communities.

EB Research Partnership utilizes an innovative business model of venture philanthropy, when making a grant to a research project they retain the added upside of generating a recurring revenue stream if the therapy or product is commercially successful, then use the return on investment to fund additional EB research until a cure is found. To learn more about EB Research Partnership visit www.ebresearch.org.